The Princess

Well yet again it has been a year!!!!! Cant believe that. Well update on Miss Jordyn (the LIL PRINCESS) unfortunately there isn't much to update on her condition. We still are having seizures we are still cute as ever..... LOL
I passed my LPN Nursing so I now get to be one of Jordyns nurses which is great! I am making up for the last year that I missed being at school.
We go to see Dr. Gupta in March and then we get to go to Cleveland again in April to see Dr. Parikh- who is the specialist who diagnosed the princess 4 years ago!!!!!!! Gotta love that man!!! and owe him ALOT for giving me some answers! Or at least can put a name with the issues we have.
Update on the seizures, well we can have a day or 2 that are pretty good then have really rough ones. Alot of the seizures (tonight its all of them) are screaming afterwards like the most awful, loud scream that stops as fast as it starts, or they are gagging, choking, and sometime projectile vomiting. She could be in the movies between the screaming and the vomit.
Jordyn has 3 good nurses, Tammy, Kris, and Jennifer and then me.
She is still getting physical therapy here at home and occupational also. She has a stander now and had to upgrade to a bigger tumble chair she got way to tall for the last one. she also has another chair with a tray. They are looking into getting a stroller along with her wheelchair..... love the wheelchair but sometime its harder to get out and get ready then the amount of time she is in it in the store.
Well I am going to update more often, and going to get off here and watch the princess. just had some ativan so hope the seizures stop for the night so she can sleep. That is what she needs!!